ملاحظات

تغيُّر العالم للتو

الفصل الأول: التشخيص الذي كنتَ تخشاه

(1)
William Kreisl, Can a Smell Test Sniff Out Alzheimer’s Disease? www.cuimc.columbia.edu/news/can-smell-test-sniff-out-alzheimers-disease, March 28, 2018.
(2)
Scott Gottlieb, Head Injury Doubles the Risk of Alzheimer’s Disease, ncbi.nim.nih.gov, November 4, 2000.
(3)
Mayo Clinic, Anesthesia, surgery linked to decline in memory and thinking, sciencedaily.com, July 19, 2018.
(4)
Owen Gleiberman, “Robin’s Wish” review, A Wrenching Look at Robin Williams’ Last Days, variety.com, September 1, 2020.
(5)
Jennie Erin Smith, In a Colombian Family’s Dementia, a Journey Through Race and History, undark.org, May 27, 2019.
(6)
The woman whose brain staved off her family’s Alzheimer’s, MIT Technology Review, technologyreview.com/2019/11/04/132061/the-woman-whose-brain-staved-off-her-familys-alzheimers/.
(7)
Bill Whitaker, Frontotemporal Dementia, Devastating, Prevalent and Little Understood, cbsnews.com, September 5, 2019.
(8)
Dr. Bruce L. Miller, Frontotemporal Dementia (Oxford University Press, 2013).
(9)
University of California, San Francisco, Nicholas Weiler, Lifestyle Choices Could Slow Familial Frontotemporal Dementia, eurekalert.org, January 7, 2020.

الفصل الثاني: إبعاد مفاتيح السيارة وإفساح المجال أمام مقدِّم رعاية من خارج الأسرة

(1)
Cindy Chang, “Elderly Driver Who Killed 10 Is Sentenced to Probation,” nytimes.com, November 21, 2006.

الفصل الثالث: الحسرة تأتي مبكِّرًا

(1)
Elisabeth Kübler Ross, On Death and Dying (Scribner, 2014).

المراحل الأولى

الفصل الرابع: أين الشخص الذي كنتُ أعرفه؟

(1)
Death with Dignity Acts, deathwithdignity.org.
(2)
Paula Span, “One Day Your Mind May Fade. At Least You’ll Have a Plan,” New York Times, nytimes.com, January 19, 2018.
(3)
JoNel Aleccia, “She Was Diagnosed with Dementia. She Documented Her Wishes for the End. Then Her Retirement Home Said No,” Washington Post, washingtonpost.com, January 18, 2020.

الفصل الخامس: فجوةٌ زمنية

(1)
Helen Schucman, Bill Thetford, Kenneth Wapnick, eds., A Course in Miracles (Foundation for Inner Peace, 1975).
(2)
Alzheimer’s Association 24/7 helpline: (800) 272–3900.

انفعالات فوضوية وتَعَلُّم الكذب

الفصل السادس: الإجهاد النفسي لدى مقدِّمي الرعاية

(1)
Gavin de Becker, The Gift of Fear (Dell, 1998).
(2)
“The Genetics of Huntington’s Disease,” Huntington’s Disease Association, hda.org.uk.
(3)
Joe Dispenza, You Are the Placebo (Hay House, 2014).
(4)
Annette Kondo, “Blinding Horrors: Women’s Vision Loss Linked to Sights of Slaughter,” Los Angeles Times, latimes.com, June 4, 1989.
(5)
Alvin Powell, “When Science Meets Mindfulness,” Harvard Gazette, news.harvard.edu, April 9, 2018.

الفصل السابع: الكذب الخلَّاق

(1)
Coleman Adult Day Services, What Is Sundowner’s Syndrome?, colemanadultday.org, November 10, 2018.

الفصل الثامن: الغضب

(1)
Ken Keyes, The Hundredth Monkey (DeVorss and Company/Vision Books, 1982).

الفصل التاسع: الشعور بالذَّنب وبلسم الضحك

(1)
Norman Cousins, Anatomy of an Illness (W. W. Norton, Twentieth Anniversary ed., 2005).

الفصل العاشر: فقدان شريك الحياة

(1)
Lavanya Ramanathan, “Lifestyle Guru B. Smith Has Alzheimer’s. Her Husband Has a Girlfriend. Her Fans Aren’t Having It,” Washington Post, washingtonpost.com, January 28, 2019.
(2)
B. Smith and Dan Gasby, Before I Forget (Harmony, reprint ed., 2016).

حين تخرج الأمور عن السيطرة

الفصل الحادي عشر: اللجوء إلى وكالة خدمات حماية الكبار

(1)
National Adult Protective Services Association, napsa-now.org.
(2)
Andrew Capehart, What to Expect When Working with Adult Protective Services, eldermistreatment.usc.edu, January 4, 2016.
(3)
Pamela D. Wilson, What Does Guardianship of an Elderly Parent Mean? pameladwilson.com.

الفصل الثاني عشر: كان أفضلَ كثيرًا بالأمس

(1)
Kamilia S. Funder, Jacob Steinmetz, Lars S. Rasmussen, Anesthesia for the patient with dementia undergoing outpatient surgery, 2009, ether.stanford.edu.

الفصل الرابع عشر: القرار الأصعب

(1)
Tracey Tully, “After Anonymous Tip, 17 Bodies Found at Nursing Home Hit by Virus,” New York Times, nytimes.com, April 15, 2020.

إعادة بناء عالَمك

الفصل الخامس عشر: العالَم الذي أنشئوه

(1)
Joan Biskupic, “A New Page in O’Connors’ Love Story,” USA Today, abcnews.go.com, February 18, 2009.
(2)
E. J. Mundell, “Love in the World of Alzheimer’s,” HealthDay News, abcnews.go.com, March 23, 2008.

الفصل السابع عشر: المقعد الخالي على الطاولة

(1)
Jack E. Othon, Carl Jung and the Shadow: The Ultimate Guide, highexistence.com.

المراحل الأخيرة

الفصل الثامن عشر: صديقك القديم الحزن

(1)
See getpalliativecare.org for an explanation of what palliative care is and more.
(2)
See Hospice Care, medicare.gov.
(3)
Caroline Richmond, “Dame Cicely Saunders,” July 23, 2005, ncbi.nlm.nih.gov/pmc/articles/PMC1179787.
(4)
Sogyal Rinpoche, The Tibetan Book of Living and Dying (HarperCollins, 1992).

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